Live Every Day Health

The most important person in your care team is you. Live Every Day is a patient built companion for living with a rare or chronic cancer. Founded by patient John Grudnowski, who had searched for a better way to both understand his own disease impact on his daily life, as well as, be best prepared for rare (every 3 months) appointments with his Hematologist. While searching for a great way to track, John suffered through months of fatigued caused by over medicating and ultimately leading to a dosage reduction at his next appointment. But why did that require 2 months of struggle, couldn't there be a better way to learn and undestand daily symptoms alongside crucial data like labs, medication, and even daily information like sleep and weather. While search, John also served on the Patient Impact Council for the MPN Rsearch Foundation and learned that this was not a porblem he alone faced.…