Netherton Syndrome

A skin diary for Netherton Syndrome (NS) — Comel-Netherton syndrome, the rare SPINK5-related genetic skin condition whose features include ichthyosis linearis circumflexa (ILC) and bamboo hair. Built for the families who manage it day by day — whether you're tracking your own skin or logging on behalf of your child. Built for detailed skin tracking: • A body map — tap any region to rate its redness, scaling, and irritation • Overall itch, pain, and sleep-impact sliders • Photos to compare skin over time • Trigger logging and optional local temperature/humidity capture (weather matters for NS skin) • Skin-care and treatment tracking, medications, and notes Insights charts trend severity by body region, itch and sleep impact, and flare patterns — a shareable record for dermatology and genetics teams, with PDF reports and CSV export. Log from your wrist: an Apple Watch companion app is…